Patient and public involvement in research

Patient and public involvement in research: Enabling meaningful contributions
RAND Europe 2019

• Based on a rapid evidence assessment and interviews with experts, the report examines why and how patients and the public get involved with research, what enables meaningful involvement, associated challenges and potential enabling mechanisms, the impact of PPI, and the evaluation of this activity. 
• The report provides a series of recommendations  and other organisations to inform strategies for engaging patients and the public.
• Work commissioned by The Healthcare Improvement Studies (THIS) Institute at the University of Cambridge.

NHS England Board meeting, 30 March 2017

NHS England Board meeting, 30 March 2017 

Highlights for Arden & GEM CSU 

Anne Gray, Knowledge Officer, Arden & GEM CSU

Video available here.

Agenda

1. Welcome and Introduction
2. Minutes of the Previous Meeting
3. Chairman’s Report
4. Chief Executive’s Report
5. NHS England’s Mandate and Business Plan for 2017-18
6. Creating a Genomic Medicine Service to lay the foundations to deliver personalised interventions and treatments
7. General practice services
8. NHS England Corporate and NHS Performance Report
9. NHS Finance Report
10. Emergency Preparedness, Resilience and Response (EPRR) Annual Report
11. Safeguarding
12. Strengthening patient and public participation in NHS England – update and revised policy
13. Reports from Board Committees
i. Commissioning Committee
ii. Investment Committee

iii. Specialised Services Commissioning Committee
iv. Audit and Risk Assurance Committee

Highlights :

Note: The NHS England Business Plan 2017/18 – to be called Next Steps on the Five Year Forward View will be published on 31 March 2017. A number of questions posed at today’s board meeting were deferred as they will be answered in the plan.

5. NHS England’s Mandate and Business Plan for 2017-18
This paper presented the intentions of the NHS England Business Plan which will address the “what” and “how” of the FYFV.

6. Creating a Genomic Medicine Service to lay the foundations to deliver personalised interventions and treatments
One of the requirements of successful implementation of Genomic Medicine Service be a joint-commissioning model with CCGs to achieve standardisation, equity of access, economies of scale and the high quality required for the future.
Engagement with GPs around the implications of the GMS are starting now.

7. General practice services
An update of work on the General Practice Forward View.
NHS England has been holding events to bring together those working on initiatives in practices – see https://twitter.com/hashtag/gpforwardview

12. Strengthening patient and public participation in NHS England
NHS England has published an updated Patient and Public Participation Policy for its internal use.

Date of Next NHS England Board meeting: 25 May 2017

NHS England Board meeting 26 May 2016

NHS England Board meeting, 26 May 2016
Highlights by Anne Gray, Knowledge Officer, Arden & GEM CSU

Papers available here.  Video available here. Minutes available here.

Agenda
Item 1: Board meeting agenda
Item 2: Minutes of meeting held on 31 March 2016
Item 3: Chief Executive’s Report
Item 4: Sustainability and Transformation Plans – progress report
Item 5: Strategic Framework
Item 6: NHS England Corporate and NHS Performance report
Item 7: NHS England Finance Report
Item 8: NHS England Governance Manual Approval
Item 9: NHS England Complaints Policy Update
Item 10:Conflicts of Interest summary report
Item 11: Update on NHS Diabetes Prevention programme
Item 12 Healthy Workforce
Item 13a Audit and Risk assurance Committee - verbal
Item 13b Commissioning Committee Update
Item 13c Specialised Services Commissioning Committee Update
Item 13d Investment Committee Update

What do patients and public understand of written evidence based health information?

Evidence-based health information from the users’ perspective – a qualitative analysis

BMC Health Services Research 2013, 13:405 doi:10.1186/1472-6963-13-405

• The aim of our study is to define the spectrum of consumers’ reaction patterns to written evidence-based health information for patients and consumers in order to gain a deeper understanding of their comprehension and assumptions, as well as their informational needs and expectations. 

Guide to public and patient participation in commissioning

Transforming Participation in Health and Care, Guidance for Commissioners
Patients and Information Directorate, NHS England 25 September 2013

• This guidance supports two legal duties, requiring clinical commissioning groups and commissioners in NHS England to enable:
• patients and carers to participate in planning, managing and making decisions about their care and treatment through the services they commission
• the effective participation of the public in the commissioning process itself, so that services reflect the needs of local people.
• The outlines the statutory duties of NHS Commissioners and highlights a range of ways in which they can fulfil these responsibilities to deliver personalised and responsive care to all. It includes a wide range of tools, resources and case studies that commissioners will find useful when developing their own responses.
• Tim Kelsey, NHS England’s National Director for Patients and Information, speaks out on the launch of Participation Guidance for commissioners.

Call to action - a discussion about the NHS to support future service development

The NHS belongs to the people - Call to Action
NHS England, 11 July 2013

• NHS England is calling on patients, the public and staff to join in a discussion about the future of the NHS, so it can plan how best to deliver services, now and in the years ahead. This call to action sets out the facts about future demands on NHS services, how the budget is currently spent and how services are delivered.
• The Call to action document discusses the key problems and opportunities that a renewed vision for the health service must address. 
• In the next phase Call to Action will be collecting data, views and information on how to meet these challenges at a local level, with work co-ordinated by CCGs and NHS England. This will be done through 
• a digital call to action - Staff, patients and the public will be able contribute via an online platform hosted by NHS Choices 
• a series of ‘Future of the NHS’ surgeries bringing together CCGs, Health and Wellbeing Boards and other local partners
• regional and national events. 
• This will feed into commissioning plans for CCGs in 2014/15 and 2015/16 and be used by NHS England to shape its direct commissioning responsibilities in primary care and specialised commissioning.
• See Call to action for General Practice

Ensuring a legacy for the work of LINks

Links to good practice - a website
Regional Voices

• This website is designed to provide support for individuals and organisations during the transition from LINks to local HealthWatch. 
• The site aims to:
• Capture the good practice developed and implemented by LINks 
• To share this through a set of resources structured around the themes of engagement, leadership, influencing and representation 
• To collate the resources developed by LINks in a good practice resource repository.

Using the FT public engagement model

How to engage the public with commissioning
HSJ, 10 May 2013

• CCGs need to engage the public in the commissioning and not get bogged down with models and processes, says Jonathan Fisher (associate consultant at Membership Engagement Services, a subsidiary company of Electoral Reform Services). 
• This article draws out the key lessons from the foundation trust sector which can be summarised  as Improving effectiveness, Fulfilling citizens’ rights and Improving society 

Anxiety over PPE

Embedding patient and public engagement : a report on learning from interviews with CCG leaders PCC, 9 January 2013

• Based on interviews with 18 people from six CCGs in waves 2 and 3, the authors found a high level of awareness and enthusiasm for the principle but underlying anxieties about PPE in practice.

Learning for HWBs

Resources for health and wellbeing boards
NHS Confederation, 8 November 2012

• A collection of resources produced by NHS Confederation, NHS Institute for Innovation and Improvement, Department of Health and Local Government Association summarising key points of learning for HWBs.
• Includes integration, engagement, patient public engagement, health impact assessment, leadership
• Products are also available on the LGA's Knowledge Hub 

Value from limited resources thorough STAR

Looking for value in hard times
Health Foundation, August 2012

• A new approach to priority setting called Star (socio-technical allocation of resources) designed to help commissioners and others pinpoint where they may be able to get additional value from their resources by using them more effectively.
• An approach to comparing the value of different interventions with active input from staff, public and patients