Nothing about us without us: Five principles for the next phase of the Covid-19 response

Nothing about us without us: Five principles for the next phase of the Covid-19 response
National Voices June 2020

• "Decision makers must engage with those citizens most affected by both the virus and lockdown restrictions and understand how lives are lived by those who have underlying conditions." National Voices, a coalition of health and care charities in England, have developed five principles to underpin and test any policy change.
• 1. Actively engage with those most impacted by the change
• 2. Make everyone matter, leave no-one behind
• 3. Confront inequality head-on
• 4. Recognise people, not categories, by strengthening personalised care
• 5. Value health, care and support equally

Health and Care Video Library

Health and Care Video Library
NHS X

• A library of videos written by NHS clinicians and developed to work within care pathways. They have been professionally produced by Health and Care Innovations (HCI) There is an area for healthcare professionals containing “a set of tools and resources to help you maximise the impact of using the video library”.

Choose Wisely UK

Choosing Wisely UK

• Choosing Wisely UK is part of a global initiative aimed at improving conversations between patients and their doctors and nurses. It is encouraging patients to have informed discussions with their clinicians and shared decision making.

CCG IAF returns 2018/19

CCG IAF annual assessment 2018/19
NHS England 11 July 2019

• Also available on MyNHS.

Data for CCG Improvement and Assessment Framework Indicator – Compliance with statutory guidance on patient and public participation in commissioning health and care
NHS England 16 July 2019

• These documents contain updated scores awarded across 5 domains and overall Red, Amber, Green, Green (RAGG) ratings for CCGs following a qualitative assessment for Indicators 50 and 57 of the CCG IAF.
• Also available on MyNHS

Patient participation page update

Get Involved

• NHS England have updated their Patient Participation webpage. 
• The page includes a section of Guidance for Commissioners

NHS England Board meeting 4 July 2018 Highlights

NHS England Board meeting 4 July 2018

Agenda

• 1. Minutes of the Previous Meeting 
• 2. Chairman’s report 
• 3. Chief Executive’s Report 
• 4. Developing the NHS long term plan: reducing ineffective or wasteful clinical procedures 
• 5. Developing the NHS long term plan: primary care reform 
• 6. General Practice Services – programme update 
• 7. Second progress report from the Empowering People and Communities Taskforce 
• 8. NHS Performance and progress on implementation of next steps 
• 9. NHS Finance Report 
• 10. Reports from Board Committees 
• i. Commissioning Committee 
• ii. Investment Committee 
• iii. Specialised Services Commissioning Committee 
• iv Audit and Risk Assurance Committee 
• 12. AOB 

Highlights for CCGs and Arden GEM CSU below relating to 
4. Developing the NHS long term plan: evidence based interventions that should not be routinely commissioned.
5. Developing the NHS long term plan: primary care reform - GP contract reform including

• A review of the Quality and Outcomes Framework (QOF)
• GP payments in light of the growth of digital-first primary care

6. GP Services Programme Update
7. Second progress report from the Empowering People and Communities Taskforce

Patient Activation Measure – implementation quick guide

Patient Activation Measure – implementation quick guide
NHS England 4 April 2018

• ‘Patient activation’ describes the knowledge, skills and confidence a person has in managing their own health and care. The quick guide provides practical and operational support to sites considering the use of Patient Activation Measure (PAM) licences. The guide focuses on why patient activation is important in managing people’s health and wellbeing, as well as elements to consider before implementing the PAM.
• The full version of the PAM implementation guide containing various modules for detailed implementation support is available from the Patient Activation: Knowledge, Skills and Confidence collaboration platform. [ID required]

Collaborative action for person-centred coordinated care (P3C)

Collaborative action for person-centred coordinated care (P3C): an approach to support the development of a comprehensive system-wide solution to fragmented care
Health Research Policy and Systems 2017 15:98

• This paper presents an approach to the implementation of person-centred coordinated care (P3C) using collaborative action, the core aim of which is to accelerate the spread and adoption of P3C in UK primary care settings. 
• Includes analysis of early developments based in the South  West.

Digital inclusion guide for health and social care - beta version

Digital inclusion guide for health and social care
NHS Digital December 2017

• One in five people lack basic digital skills and one in twelve people have never been online. This guide is aimed at local health and care organisations to help them to take practical steps to support digital inclusion in their communities.
• It includes a heatmap showing the overall likelihood of digital exclusion across the UK and useful links and resources to commission, provide and evaluate digital inclusion support.

Person-centred care in 2017: Evidence from service users

Person-centred care in 2017: Evidence from service users
National Voices September 2017

• A snapshot of the extent of person-centred care in the English health and care system, based on how people report their experience of treatment, care and support.
• The research focused on how people experienced information, communication, participation in decisions, care planning and care coordination. It also looks at family, carers and the varying experiences of particular groups of patients and service users.

New care models: harnessing technology

New care models: harnessing technology
NHSCC, NHS Confederation, NHS Providers, LGA 11 September 2017

• An examination of how digital tools can help to deliver health and care services. 
• The report stresses the importance of involving stakeholders, both service users and clinicians, at all stages of introducing new digital technologies, and that local areas should "steal with pride" and make use of learning and evidence from other areas.
• Case studies from five vanguards - East and North Hertfordshire, Better Care Together Morecambe Bay, Better Together Mid Nottinghamshire, Salford Together and East Midlands Radiology Consortium.

Scoping review of review-level evidence on co-production in local decision-making and its relationship to community wellbeing

Scoping review of review-level evidence on co-production in local decision-making and its relationship to community wellbeing
What Works Wellbeing, July 2017

• This review found that there were few reviews of evidence from studies of (clear) empowerment-based approaches to co-production in local decision-making. 
• The concepts and related interventions of engagement, involvement, participation, consultation, volunteering and empowerment are frequently conflated in the current evidence-base. While there seems to be plenty of action aimed at enabling communities to have meaningful influence on local policies and services, there currently appears to be little evidence on how such interventions actually impact on individuals’ health and wellbeing.

How can we all best use scientific evidence?

How can we all best use scientific evidence?
Academy of Medical Sciences June 2017

• A survey of British adults which indicated that only 37% of the public said they trusted evidence from medical research, compared to 65% who trusted the experiences of their friends and family. 
• The Academy of Medical Science has drawn up an action plan on how to make sure medical research is robust, relevant, trusted and that the evidence generated is useful and accessible to doctors and patients.

Involving people in health and care guidance

Involving people in health and care guidance
NHS England 6 April 2017

• Two sets of guidance, and a wealth of web based resources and best practice:
• Patient and public participation in commissioning health and care: statutory guidance for CCGs and NHS England and 
• Involving people in their own health and care: statutory guidance for CCGs and NHS England
• These documents set out the context, benefits and principles of involving people in health and care, the relevant legal duties and key actions for CCGs and NHS England and supersede the original ‘Transforming Participation in Health and Care’ guidance (2013).
• Read the commentary from Mills & Reeves here.

Developing patient and public participation skills and understanding

Developing patient and public participation skills and understanding
NHS England Involvement Hub

• A series of downloadable resources to support patient and public engagement and participation:
• Foundation in engagement for health and care services 
• Understanding the value of engagement
• How to measure engagement on the ground
• Planning engagement for major service change – the law of consultation

NHS England Involvement Hub

NHS England Involvement Hub

https://www.england.nhs.uk/participation/

• The Involvement Hub is a source of information and resources which will help people to develop their knowledge, skills and confidence to get involved in the design and delivery of health services, including an introduction to the NHS.
• The site also includes examples of good practice and links to learning and involvement opportunities.
• Resources include a range of Bite size guides eg principles for participation in commissioning, event planning, governance, finance and expenses.
• New content will be added on a regular basis.

Guide to Annual Reporting on Patient and the Public Participation

A Guide to Annual Reporting on the Legal Duty to Involve Patients and the Public in Commissioning
NHS England July 2016

• The Guide sets out the organisations’ responsibilities to report on how they meet their legal duties to involve patients and the public in their work. 
• The guide includes useful tools, resources and good practice examples to support the development of annual reports. It also provides advice on making reports accessible and appealing.
• CCGs are advised to use the guide to inform their annual reporting processes for 2016/17

Bite-size guides to support patient and public participation

Bite-size guides to support patient and public participation
NHS England July 2016

• A series of bite sized guides to support public patient participation including:
• 1 – Principles for Participation in Commissioning
• 2 – Governance for Participation
• 3 – Planning for Participation
• 4 – Budgeting for Participation
• 5 – Grant for the Voluntary Sector
• 6 – Improving deafblind patient and carer public voice in the NHS
• 7 – Diverse and Inclusive participation
• 8 – Online participation
• 9 – Running Focus Groups
• 11 – Partner Participation
• 12 – Mediation between Patients
• 13 – Event Planning and Delivery
• 14 – Engaging with Communities

Patient Activation - Measuring patients' management of their LTC

Patient activation Measure
NHS England

• Patient activation describes the knowledge, skills and confidence a person has in managing their own health and care and is of particular importance to people with long term conditions.
• The Patient Activation Measure (PAM) is a tool that enables healthcare professionals to measure a patient’s activation level.

Public involvement in research

Public involvement in research
NHS Health Research Authority, INVOLVE 23 May 2016

• Joint publications outlining the evidence on how public involvement can help to make research more ethical and produce better outcomes, and guidance on public involvement within ethical review.