Change Foundation January 2016
- This report reflects on a five-year patient engagement project carried out in Ontario, Canada, presenting the lessons learnt about the who, what, how and what next of successful (and less successful) patient engagement initiatives.
- Recommendations and tips for patient engagement coming out of the project include:
- Consider a range of engagement formats
- Choose the best timeframe for meaningful input
- Consider partnering
- Recruit wisely
- Be clear about your purpose and objectives
- Be clear about the organization’s scope of influence
- Develop a code of conduct together
- Have an exit strategy in place
- Give participants the tools they need
- Expect the unexpected…
- Give participants the recognition they deserve
- Report back
- Be aware—and careful—of people’s emotions
- Carry it forward
- Appendix A "Methods and practices in effective patient and caregiver engagement"
