Kings Fund, 4 November 2014
- This report examines the reasons why patients do not have a stronger voice in decisions about their health and care, and that services do not properly reflect their needs and preferences despite existing policies supporting this. It also considers how we can advance the cause of making person-centred care the core of health and care reform.
- The authors set out eight key forms of individual involvement,
- engaging people in keeping healthy
- shared decision-making
- supported self-management
- having a personal health or social care budget
- involving families and carers
- choosing a provider
- taking part in research as part of your care and treatment
- evaluating services through feedback
- Policy implications - In addition to work by NHS England on transforming participation,national bodies need to:
- develop a model of professional education and training based on working with users and citizens
- provide staff and patients with access to high-quality tools for structuring and recording care-planning and shared decision-making
- measure involvement and hold organisations to account
- enable local organisations to focus on patients not politicians, with a national approach to reform that supports organisations to lead change locally.
